I appreciate your interest in this topic, but respectfully, many of your points are incorrect.

ME/CFS is real. [1][2][3] Alzheimer's is terrifying, but I don't believe it is fair to say that it is obviously more terrifying than ME/CFS. People with ME/CFS have an abysmal quality of life. [4][5] And finally, ME/CFS is significantly underfunded by an orders of magnitude across all metrics, even when you account for the some of the concerns you raised such as dollars per patient, dollars per year lived with disability, etc. [6][7]

For those who haven't heard of ME/CFS, let me give you a high level summary.

We are all fatigued in this day and age, but fatigue isn't sufficient to describe what it is like living with ME/CFS.

At mild severity you are so fatigued that you have to decide between showering or doing laundry as your one physical activity for the week. But if misjudge and overexert yourself, it can take days or weeks before you get some of your energy back, assuming it ever does. Overexertion risks permanently decreasing your energy capacity.

As ME/CFS progresses in severity, the more comparable your life becomes (subjectively) comparable to someone with Locked-in syndrome. You become unable to talk and walk. Even looking at colors and hearing loud noises can be too much exertion, leading many people to wear earplugs and blindfolds for all hours of the day for months/years at a time. You have no choice to lay unmoving in bed all hours of the day with nothing but your limited thought capacity to keep you company. ME/CFS is currently incurable and virtually untreatable, but usually isn't fatal. It is possible that the disease eventually gets so severe that breathing and beating your heart is too much exertion, but that is almost unheard of. You have to live like that for rest of your life.

You are surrounded by people who don't even believe in the disease, and getting disability benefits is borderline impossible.

This disease isn't even rare - estimates are between 1-3 million people in USA alone. That's roughly 1 in 100 to 1 in 300.

Studies showing CFS is a real biological illness (there are plenty more, too many to list here) [1] https://www.mdpi.com/1648-9144/60/1/83 [2] https://pmc.ncbi.nlm.nih.gov/articles/PMC6787691/ [3] https://www.nature.com/articles/s41467-024-45107-3

Studies about MECFS quality of life: [4] https://pmc.ncbi.nlm.nih.gov/articles/PMC11356561/ [5] https://pubmed.ncbi.nlm.nih.gov/26147503/

Studies detailing how grossly underfunded CFS is [6] https://pubmed.ncbi.nlm.nih.gov/32568148/ [7] https://www.nature.com/articles/s43856-026-01516-7

user:	IanGallacher
created:	November 19, 2024
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